0071/2014 - Sobrecarga no cuidar e suas repercussões nos cuidadores de pacientes em fim de vida: Revisão sistemática da literatura Burden in caregiving and their consequences on end of life patients’ caregivers: a systematic review of the literature
• Mayra Delalibera - Delalibera, M. - São João do Estoril, Outro País/Another Country - Instituto Superior de Psicologia Aplicada – ISPA - <mayrarmani@yahoo.com.br>
Coautor(es):
• Isabel Leal - Leal,Isabel - Instituto Superior de Psicologia Aplicada – ISPA - <mayrarmani@yahoo.com.br>
• António Barbosa - Barbosa,António - Faculdade de Psicologia da Universidade de Lisboa - <mayrarmani@yahoo.com.br>
• Joana Presa - Presa,Joana - Núcleo Académico de Estudos e Intervenção sobre Luto – Faculdade de Medicina da Universidade de Lisboa - <mayrarmani@yahoo.com.br>
Área Temática:
Saúde e Trabalho
Resumo:
Cuidar de um familiar com doença avançada e/ ou em fim de vida pode representar uma grande sobrecarga emocional, física e financeira que afeta a qualidade de vida dos cuidadores. O presente estudo teve como objetivo realizar uma revisão sistemática da literatura sobre a sobrecarga no cuidar, os fatores relacionados e suas consequências nos cuidadores de pacientes com câncer avançado em fim de vida ou em cuidados paliativos. Foi realizada uma busca de artigos científicos publicados nas bases de dados EBSCO, Web of Knowledge e BIREME desde que existem registros nas respectivas bases de dados sobre o tema até Março de 2014. Dos 582 artigos encontrados, apenas 27 artigos foram selecionados. A maioria dos artigos encontrou que os cuidadores familiares estão sobrecarregados. Em alguns estudos, a sobrecarga no cuidar aparece associada a características do paciente e da sua doença, em outros a um pior estado de saúde do cuidador, a uma maior sintomatologia psicopatológica (ansiedade, depressão, distress emocional) e também ao desenvolvimento de complicações no luto. Porém, a esperança, o apoio social, a capacidade do cuidador de atribuir um significado à experiência de cuidar e se sentir confortável com as tarefas de cuidar foram associados a menores níveis de sobrecarga.
Palavras-chave:
sobrecarga do cuidador, cuidadores familiares, fim de vida, cuidados paliativos
Abstract:
Caring for a family member with an advanced and/or terminal illness can be an great emotional, physical and financial burden that affects the caregiver’s quality of life. The aim of the present study is to conduct a systematic review of the literature about the burden of caregiving, related factors and the consequences for family caregivers of advanced stage cancer patients or patients in palliative care. The research was conducted considering papers published in the EBSCO, Web of Knowledge and BIREME databases since there are records on this topic until March 2014. Of the 582 articles found, only 27 were selected. The majority of the articles found that family caregivers were overburdened. Some studies found that the caregiving burden was associated with some characteristics of the patient and his illness while, in another studies, it was associated with poor health of the caregiver, greater psychopathological symptoms (anxiety, depression, emotional distress) and with the development of complications in the grief process. However, hope, social support, the ability of the caregiver to give meaning to the experience of caring and feel comfortable with the tasks of caring were associated with lower levels of burden.
Keywords:
caregiver burden, family caregivers, end of life, palliative care
Burden in caregiving and their consequences on end of life patients’ caregivers: a systematic review of the literature
Resumo (abstract):
Caring for a family member with an advanced and/or terminal illness can be an great emotional, physical and financial burden that affects the caregiver’s quality of life. The aim of the present study is to conduct a systematic review of the literature about the burden of caregiving, related factors and the consequences for family caregivers of advanced stage cancer patients or patients in palliative care. The research was conducted considering papers published in the EBSCO, Web of Knowledge and BIREME databases since there are records on this topic until March 2014. Of the 582 articles found, only 27 were selected. The majority of the articles found that family caregivers were overburdened. Some studies found that the caregiving burden was associated with some characteristics of the patient and his illness while, in another studies, it was associated with poor health of the caregiver, greater psychopathological symptoms (anxiety, depression, emotional distress) and with the development of complications in the grief process. However, hope, social support, the ability of the caregiver to give meaning to the experience of caring and feel comfortable with the tasks of caring were associated with lower levels of burden.
Palavras-chave (keywords):
caregiver burden, family caregivers, end of life, palliative care
Delalibera, M., Leal,Isabel , Barbosa,António, Presa,Joana. Sobrecarga no cuidar e suas repercussões nos cuidadores de pacientes em fim de vida: Revisão sistemática da literatura. Cien Saude Colet [periódico na internet] (2014/Out). [Citado em 01/07/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/sobrecarga-no-cuidar-e-suas-repercussoes-nos-cuidadores-de-pacientes-em-fim-de-vida-revisao-sistematica-da-literatura/15055?id=15055&id=15055
