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0285/2017 - Impacts of long-term illness: Experience of young adults with Acute Myeloid Leukemia.
Impactos de adoecimento de longa duração: Experiência de adultos jovens com Leucemia Mielóide Aguda.

Author:

• Reni Barsaglini - Barsaglini, R. - <barsaglinireni@gmail.com> +
ORCID: https://orcid.org/0000-0002-8903-2695

Co-author(s):

• Beluci Bianca Soares - Soares, BB - <beluci_bianca@hotmail.com>


Abstract:

The present article analyzes the material and immaterial impacts immersed in the experience of young adults with a long-term illness - Acute Myeloid Leukemia. It followsa broader research, inspired by the Phenomenology of Alfred Schutz. The data analyzed by the thematic analysis were obtained through in-depth interviews with four young adults, aged 20 to 28 years, who were in the maintenance phase of cancer treatment between November 2013 and January 2014 in Mato Grosso. The results focus on striking aspects of the impacts on experience as the process of finding the disease in which the diagnosis provoked feelings mobilized by ideas about a serious illness. Following are the impacts on appearance due to the treatment standing out the hair loss and the coping strategies everyday, as well as the increase or loss of weight. Finally, the impact of the imminence of death in the face of the lethality of the disease and the testimony of the occurrence in known persons is remarkable, putting it as a concrete possibility for itself, but also as survivors. Impacts are the effects and transformations in the lives of people and their surroundings and evoke (re)actions, however, they are diluted in the experience composing it, and not being homogeneous, its approach privileges the singularity inscribed in contextualized biographies.

Keywords:

Acute Myeloid Leukemia, illness experience, chronic

Content:

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Barsaglini, R., Soares, BB. Impacts of long-term illness: Experience of young adults with Acute Myeloid Leukemia.. Cien Saude Colet [periódico na internet] (2017/Sep). [Citado em 27/09/2024]. Está disponível em: http://cienciaesaudecoletiva.com.br/en/articles/impacts-of-longterm-illness-experience-of-young-adults-with-acute-myeloid-leukemia/16337



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