0218/2018 - Circunstâncias e consequências do cuidar: Estudo prospetivo em cuidados paliativos . Circumstances and consequences of care: A prospective study in palliative care.
As várias circunstâncias que afetam a prestação de cuidados em fim-de-vida podem ter um papel determinante no resultado desta experiência, nomeadamente nos níveis de morbilidade psicológica antes e depois da perda. Este estudo tem por objetivos descrever a prevalência da sobrecarga e sintomatologia psicopatológica dos cuidadores familiares em cuidados paliativos e identificar as circunstâncias que lhe estão associadas. Pretendemos ainda avaliar a evolução da sintomatologia, identificando os fatores circunstanciais que interferem na fase aguda do luto. A amostra foi constituída por 75 cuidadores portugueses, a maioria do sexo feminino e filhas do doente. Os resultados revelam que as pessoas mais envolvidas nos cuidados ao doente apresentam mais sobrecarga e estão mais propensas a sintomatologia psicopatológica, a qual tem tendência a manter-se no luto. Ficou também demonstrada a existência de sintomas peritraumáticos que parecem contribuir significativamente para o estado geral de distress no luto agudo. O suporte social tem efeito protetor nos diferentes quadros sintomatológicos e está relacionado com o funcionamento familiar. Estes resultados sugerem a possibilidade de identificar precocemente os cuidadores mais vulneráveis e as circunstâncias adversas que os afetam.
Circumstances of end-of-life care influence the outcome of this experience, particularly in psychological morbidity levels before and after loss. The aim of this study was to describe the prevalence of psychopathological symptoms and burden in family caregivers in palliative care and to identify the circumstances associated to care provision. We also intended to evaluate the progress of psychopathological symptoms, identifying circumstantial factors that can interfere in acute grief. The sample consisted in 75 Portuguese caregivers, mostly women and patient’s daughters. The results show that caregivers more involved in patients care have more burden and are more likely to have psychopathological symptoms. This symptoms tends to remain in acute grief. Moreover, the existence of peritraumatic symptoms seem to contribute significantly to the overall state of distress in acute grief. Social support have specific protective effect in symptomatology and are closely related to the family functioning. These results suggest the possibility of early identification of the most vulnerable caregivers and the adverse circumstances that affect them.
Keywords:
family caregiver, palliative care, burden, psychological morbidity, grief.
Circumstances and consequences of care: A prospective study in palliative care.
Resumo (abstract):
Circumstances of end-of-life care influence the outcome of this experience, particularly in psychological morbidity levels before and after loss. The aim of this study was to describe the prevalence of psychopathological symptoms and burden in family caregivers in palliative care and to identify the circumstances associated to care provision. We also intended to evaluate the progress of psychopathological symptoms, identifying circumstantial factors that can interfere in acute grief. The sample consisted in 75 Portuguese caregivers, mostly women and patient’s daughters. The results show that caregivers more involved in patients care have more burden and are more likely to have psychopathological symptoms. This symptoms tends to remain in acute grief. Moreover, the existence of peritraumatic symptoms seem to contribute significantly to the overall state of distress in acute grief. Social support have specific protective effect in symptomatology and are closely related to the family functioning. These results suggest the possibility of early identification of the most vulnerable caregivers and the adverse circumstances that affect them.
Palavras-chave (keywords):
family caregiver, palliative care, burden, psychological morbidity, grief.
Delalibera, M., Coelho, A., Presa,Joana, Barbosa, A., Leal, Isabel. Circunstâncias e consequências do cuidar: Estudo prospetivo em cuidados paliativos .. Cien Saude Colet [periódico na internet] (2018/Abr). [Citado em 08/11/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/circunstancias-e-consequencias-do-cuidar-estudo-prospetivo-em-cuidados-paliativos/16751?id=16751&id=16751
