0135/2026 - Acompanhantes em internações prolongadas na pediatria: narrativas de cuidado e reflexões sobre políticas públicas Caregivers during prolonged pediatric hospital stays: narratives of care and reflections on public policies.
A pesquisa analisou os efeitos do processo de cuidado em acompanhantes nas internações de longa permanência numa unidade pediátrica de um hospital universitário no Rio de Janeiro/Brasil. Utilizou-se a entrevista em história oral temática empregada com o apoio teórico do conceito de narrativas de vida. Os resultados foram avaliados pela abordagem hermenêutica-dialética, sintetizadas nas categoriais de análise: Adoecimento da Criança e do Adolescente e Mudanças na Dinâmica de Vida das Cuidadoras e Família; Impactos das Internações Prolongadas na Renda Familiar; A Dimensão Relacional do Cuidado; Lazer e Autocuidado para viver e cuidar. As categorias teórico-analíticas foram: múltiplos arranjos familiares; divisão racial e sexual do trabalho; feminismo decolonial; o cuidado como um direito social e cuidado em saúde numa perspectiva ampliada. As mulheres são as principais acompanhantes dos usuários em internações prolongadas na pediatria, e abandonam seus planos para viver em prol de seus dependentes. Elas buscam estratégias de sobrevivência e respostas institucionais. A atual Política Nacional de Cuidados no Brasil pode ser considerada, junto com outras políticas e articulada à luta por uma sociedade mais justa, uma forma reconhecimento da dignidade destas cuidadoras.
Palavras-chave:
direito ao cuidado; política de saúde; cuidadoras na pediatria; divisão racial e sexual do trabalho
Abstract:
This research analyzed the effects of the care process on caregivers during long-term hospitalizations in a pediatric unit of a hospital in Rio de Janeiro, Brazil. Thematic oral history interviews were used, supported by the theoretical concept of life narratives. The results were evaluated university using a hermeneutic-dialectical approach, synthesized into the following analytical categories: Child and Adolescent Illness and Changes in the Life Dynamics of Caregivers and Family; Impacts of Prolonged Hospitalizations on Family Income; The Relational Dimension of Care; Leisure and Self-Care for Living and Caring. The theoretical-analytical categories were: multiple family arrangements; racial and sexual division of labor; decolonial feminism; care as a social right; and health care from a broader perspective. Women are the primary caregivers of patients with prolonged hospital stays in pediatrics, and they often abandon their own plans to live for the sake of their dependents. They seek survival strategies and institutional responses. The current National Care Policy in Brazil can be considered, along with other policies and linked to the struggle for a more just society, as a way of recognizing the dignity of these caregivers.
Keywords:
right to care; health policy; caregivers in pediatrics; racial and sexual division of labor
Caregivers during prolonged pediatric hospital stays: narratives of care and reflections on public policies.
Resumo (abstract):
This research analyzed the effects of the care process on caregivers during long-term hospitalizations in a pediatric unit of a hospital in Rio de Janeiro, Brazil. Thematic oral history interviews were used, supported by the theoretical concept of life narratives. The results were evaluated university using a hermeneutic-dialectical approach, synthesized into the following analytical categories: Child and Adolescent Illness and Changes in the Life Dynamics of Caregivers and Family; Impacts of Prolonged Hospitalizations on Family Income; The Relational Dimension of Care; Leisure and Self-Care for Living and Caring. The theoretical-analytical categories were: multiple family arrangements; racial and sexual division of labor; decolonial feminism; care as a social right; and health care from a broader perspective. Women are the primary caregivers of patients with prolonged hospital stays in pediatrics, and they often abandon their own plans to live for the sake of their dependents. They seek survival strategies and institutional responses. The current National Care Policy in Brazil can be considered, along with other policies and linked to the struggle for a more just society, as a way of recognizing the dignity of these caregivers.
Palavras-chave (keywords):
right to care; health policy; caregivers in pediatrics; racial and sexual division of labor
Artmann, E., Miranda, L, Marques, TC. Acompanhantes em internações prolongadas na pediatria: narrativas de cuidado e reflexões sobre políticas públicas. Cien Saude Colet [periódico na internet] (2026/mai). [Citado em 12/09/2026].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/acompanhantes-em-internacoes-prolongadas-na-pediatria-narrativas-de-cuidado-e-reflexoes-sobre-politicas-publicas/20033?id=20033
