0993/2013 - Participação de usuários e familiares na pesquisa em saúde mental: algumas experiências brasileiras Participation of users and families in mental health research: Some Brazilian experiences
Neste artigo os autores fazem a contextualização e descrição da participação de usuários e familiares em pesquisas em saúde mental no Brasil abordando a tradição recente das experiências de recuperação (recovery) e empoderamento (empowerment), para delimitar a análise de algumas experiências brasileiras de pesquisas avaliativas e de projetos de intervenção que contam com estes atores sociais como pesquisadores. São relatadas sucintamente as experiências de Grupos de Ajuda Mútua e Guia da Gestão Autônoma de Medicação, com o objetivo de analisar os limites e possibilidades da participação de usuários e familiares na pesquisa, ainda incipiente e pontual na realidade brasileira. Os autores recomendam a construção de uma agenda na política pública de saúde que estimule esta participação.
Palavras-chave:
Participação cidadã
Participação comunitária
Participação social
saúde mental
empoderamento
recovery
Abstract:
In this paper the authors describe and contextualize the participation of patients and their families in mental health research in Brazil, addressing the recent tradition of the experiences of recovery and empowerment to delimit the analysis of some Brazilian experiences of evaluative research and intervention projects, that rely on these social actors as researchers. Are reported briefly the experiences of Self-Help Groups and Guide to Self Management of Medication, in order to analyze the limits and possibilities of participation of users and their families in research, still incipient and punctual in the Brazilian reality. The authors also recommend the building of an agenda in public health policy that encourages this participation.
Keywords:
Citizen participation
Consumer participation
Social participation
Mental health
empowerment
recovery
Participation of users and families in mental health research: Some Brazilian experiences
Resumo (abstract):
In this paper the authors describe and contextualize the participation of patients and their families in mental health research in Brazil, addressing the recent tradition of the experiences of recovery and empowerment to delimit the analysis of some Brazilian experiences of evaluative research and intervention projects, that rely on these social actors as researchers. Are reported briefly the experiences of Self-Help Groups and Guide to Self Management of Medication, in order to analyze the limits and possibilities of participation of users and their families in research, still incipient and punctual in the Brazilian reality. The authors also recommend the building of an agenda in public health policy that encourages this participation.
Palavras-chave (keywords):
Citizen participation
Consumer participation
Social participation
Mental health
empowerment
recovery
Presotto, R.F., Vasconcelos, EM, Delgado, P.G.G, Silveira, M.. Participação de usuários e familiares na pesquisa em saúde mental: algumas experiências brasileiras. Cien Saude Colet [periódico na internet] (2013/jun). [Citado em 23/12/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/participacao-de-usuarios-e-familiares-na-pesquisa-em-saude-mental-algumas-experiencias-brasileiras/13326?id=13326
