0044/2018 - Possíveis novos determinantes da qualidade de vida de pacientes com câncer de tireóide tratado: um estudo qualitativo. New possible determinants of quality of life for patients with treated thyroid cancer: a \"modern risk\"?
• Bruno José Barcellos Fontanella - Fontanella, B.J.B. - <bruno@ufscar.br>
Resumo:
Objetivou-se uma abordagem qualitativa de fatores que determinariam a qualidade de vida de pacientes com carcinoma papilífero de tireoide tratados. Foram feitas 16 entrevistas em profundidade com indivíduos de 18 a 45 anos sobre suas representações e experiências com esta enfermidade, seguidas por análise de conteúdo de enunciados. Os resultados contêm aspectos já previstos em questionários estruturados sobre qualidade de vida, mas outros estão parcialmente presumidos nesses questionários (manejo do conceito de etiologia da doença, a inserção “forçada” dos pacientes no universo conceitual médico, o medo do prognóstico e as mudanças “positivas” no estilo de vida). A interpretação desses resultados beneficiaram-se de elaborações teóricas de desenvolvimento recente: as angústias sobre a experiência da doença parecem configurar-se, para os participantes, como um “risco moderno”, no contexto de uma “sociedade de riscos”. O desenvolvimento de questionários estruturados de qualidade de vida requer constantes estudos qualitativos que captem mudanças nos aspectos subjetivos do construto, dada a dinamicidade dos significados histórico-culturais e psicológicos do processo saúde-doença, constantemente influenciados por inovações tecnológicas e sucessivas interpretações epidemiológicas.
Palavras-chave:
Pesquisa qualitativa, qualidade de vida, carcinoma papilífero da tireoide, adultos.
Abstract:
The aim of this work was to have a qualitative approach of determinant factors of the quality of life of treated patients with papillary thyroid carcinoma. Sixteen in-depth interviews were conducted with individuals 18 to 45 years old about their representations and experiences with this disease, followed by statements’ content analysis. The results contain aspects already provided in structured questionnaires about quality of life, but others are partially assumed (as the management of the concept of disease etiology, the \"forced\" inclusion of patients into the medical conceptual universe, fear of the prognosis and positive changes in one\'s life style). The interpretation of these results were benefitedrecently developed theoretical elaborations: the anxieties related to illness experience seem to be configured as a \"modern risk\", in the context of a \"risk society\". Developments of structured questionnaires on quality of life require constant qualitative studies that capture changes in subjective aspects of the construct, due to the dynamics of historical, cultural and psychological meanings of the health-disease process, constantly influenced by technological innovations and successive epidemiological interpretations.
Keywords:
Qualitative research, quality of life, papillary thyroid carcinoma, adults.
New possible determinants of quality of life for patients with treated thyroid cancer: a \"modern risk\"?
Resumo (abstract):
The aim of this work was to have a qualitative approach of determinant factors of the quality of life of treated patients with papillary thyroid carcinoma. Sixteen in-depth interviews were conducted with individuals 18 to 45 years old about their representations and experiences with this disease, followed by statements’ content analysis. The results contain aspects already provided in structured questionnaires about quality of life, but others are partially assumed (as the management of the concept of disease etiology, the \"forced\" inclusion of patients into the medical conceptual universe, fear of the prognosis and positive changes in one\'s life style). The interpretation of these results were benefitedrecently developed theoretical elaborations: the anxieties related to illness experience seem to be configured as a \"modern risk\", in the context of a \"risk society\". Developments of structured questionnaires on quality of life require constant qualitative studies that capture changes in subjective aspects of the construct, due to the dynamics of historical, cultural and psychological meanings of the health-disease process, constantly influenced by technological innovations and successive epidemiological interpretations.
Palavras-chave (keywords):
Qualitative research, quality of life, papillary thyroid carcinoma, adults.
Germano, Carla Maria Ramos, Bonato, Debora, Maion, Victor Hugo, de Avó, Lucimar Retto da Silva, Melo, D.G., Fontanella, B.J.B.. Possíveis novos determinantes da qualidade de vida de pacientes com câncer de tireóide tratado: um estudo qualitativo.. Cien Saude Colet [periódico na internet] (2018/jan). [Citado em 24/12/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/possiveis-novos-determinantes-da-qualidade-de-vida-de-pacientes-com-cancer-de-tireoide-tratado-um-estudo-qualitativo/16577?id=16577&id=16577
