0382/2016 - A interação entre as pessoas com síndrome de down e seus irmãos: Um estudo exploratório. Interaction between people with down syndrome and his siblings: An exploratory study.
• Bruna Rafaela de Batista - BATISTA, BRUNA RAFAELA DE - Universidade Federal de Sao Carlos, Psicologia - <bru_tifa@yahoo.com.br>
Coautor(es):
• Márcia Duarte Duarte - Duarte, Márcia Duarte - Universidade Federal de Sao Carlos, Psicologia - <marciaduar@yahoo.com.br>
• Fabiana Cia - Cia, Fabiana - Universidade Federal de Sao Carlos, Psicologia - <fabianacia@yahoo.com.br>
Área Temática:
Saúde da Criança e do Adolescente
Resumo:
A presença de uma pessoa com deficiência provoca transformações na família que exigem, de cada membro, redefinição de papéis. O irmão como todos os outros membros, passa por processos de frustração, aceitação, culpa e mudanças. Nesse sentido, objetivou-se (a) analisar a interação entre o irmão com desenvolvimento típico e o irmão com síndrome de Down; (b) identificar que informação e reação os irmãos com desenvolvimento típico possuem sobre o diagnóstico da síndrome de Down; (c) verificar se houve ou não modificações no contexto familiar e em suas próprias vidas após o nascimento do irmão com síndrome de Down. A pesquisa, realizada por meio de entrevistas, teve como participantes sete irmãos com desenvolvimento típico de pessoas com síndrome de Down. O estudo demonstrou que os irmãos, assim como os demais agentes familiares, passam por processos de aceitação, confusão e por várias outras complexidades com a qual a deficiência está atrelada, mas que estas não são tão marcantes quanto aos de seus pais. Um indicativo apontado no estudo se refere à importância de grupos de apoio para irmãos, que visem trabalhar questões como preconceito e sentimentos aversivos perante a deficiência. Os irmãos com desenvolvimento típico precisam de informações corretas, bem como apoio, visando favorecer a interação entre irmãos.
Palavras-chave:
IrmãosSíndrome de DownFamília
Abstract:
The presence of a disabled person causes changes in the family that require each member, a redefinition of their roles. The sibling as all the other members, undergoes frustration, acceptance, guilt and changing processes. In this sense, it aimed to; (a) analyze the interaction between the sibling with a typical development and the sibling with Down syndrome; (b) identify what information and reaction the siblings with typical development have on the diagnosis of Down syndrome; (c) verify whether or not there were changes within the family and also changes in their own lives after the birth of the sibling with Down syndrome. The survey was conducted through interviews whose participants were seven children with typical development of people with Down syndrome. The study showed that the siblings, as well as the other family members, undergo acceptance processes, confusion and several others complexities in which the disability is linked, although these are not as distinguished as those caused to their parents. An evidential pointed in this study refers to the importance of support groups for siblings, aimed at working issues such as prejudice and aversive feelings towards disability. The siblings with typical development need correct information and support, in order to favor the interaction between siblings.
Interaction between people with down syndrome and his siblings: An exploratory study.
Resumo (abstract):
The presence of a disabled person causes changes in the family that require each member, a redefinition of their roles. The sibling as all the other members, undergoes frustration, acceptance, guilt and changing processes. In this sense, it aimed to; (a) analyze the interaction between the sibling with a typical development and the sibling with Down syndrome; (b) identify what information and reaction the siblings with typical development have on the diagnosis of Down syndrome; (c) verify whether or not there were changes within the family and also changes in their own lives after the birth of the sibling with Down syndrome. The survey was conducted through interviews whose participants were seven children with typical development of people with Down syndrome. The study showed that the siblings, as well as the other family members, undergo acceptance processes, confusion and several others complexities in which the disability is linked, although these are not as distinguished as those caused to their parents. An evidential pointed in this study refers to the importance of support groups for siblings, aimed at working issues such as prejudice and aversive feelings towards disability. The siblings with typical development need correct information and support, in order to favor the interaction between siblings.
BATISTA, BRUNA RAFAELA DE, Duarte, Márcia Duarte, Cia, Fabiana. A interação entre as pessoas com síndrome de down e seus irmãos: Um estudo exploratório.. Cien Saude Colet [periódico na internet] (2016/ago). [Citado em 24/12/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/a-interacao-entre-as-pessoas-com-sindrome-de-down-e-seus-irmaos-um-estudo-exploratorio/15808?id=15808&id=15808
