0262/2021 - Pessoas vivendo com HTLV: sentidos da enfermidade, experiência do adoecimento e suas relações com o trabalho People living with HTLV: meanings of the illness, experience of illness and its relationship with work
Estima-se uma prevalência de 2,5 milhões de pessoas infectadas pelo vírus linfotrópico de células T humanas no Brasil, atingindo sobretudo populações negras e de baixo nível socioeconômico. Este artigo apresenta parte dos resultados de pesquisa que objetivou compreender a experiência do adoecimento de pessoas vivendo com HTLV, os modos de andar a vida e as relações com o trabalho. Foram realizadas 31 entrevistas semiestruturadas com usuários de instituto de pesquisa em doenças infecciosas e as narrativas orais constituíram o corpus analisado com o uso do software Sketch Engine. A análise do discurso utilizou referenciaisdas Ciências Sociais, com ênfase na relação saúde-trabalho. As manifestações do HTLV trazem prejuízo funcional e influenciam nos modos de andar a vida, repercutindo no trabalho formal, informal e doméstico. As narrativas evidenciaram queixas relativas aos sintomas físicos e outros problemas de saúde além de preconceito, falta de apoio familiar e expressivas repercussões no trabalho, questões agravadas pele ausência de políticas públicas voltadas para as pessoas que vivem com HTLV. As condições materiais, simbólicas e subjetivas dos trabalhadores causadas pela perda progressiva da capacidade física e a aposentadoria precoce afetam não somente a esfera física, assim como a psíquica e social. A melhor compreensão da condição do paciente e de suas necessidades poderá contribuir para a prestação de uma assistência integral e efetiva por parte dos serviços de saúde e na construção de políticas públicas e defesa de direitos.
Palavras-chave:
HTLV, Experiência do Adoecimento, Análise do Discurso, Pesquisa Qualitativa, Saúde do Trabalhador
Abstract:
It is estimated a prevalence of 2.5 million people infected by the human T-cell lymphotropic virus in Brazil, affecting mainly afro-descendant populations with low socioeconomic status. This article presents part of the results of a research that aimed to understand the illness experience of people living with HTLV, the ways of going about life and the relationships with work. Thirtyonesemi-structured interviews wereconductedwithusersofaninfectiousdiseaseresearchinstitute. The oral narratives constituted the corpus that was analyzed using the Sketch Engine software. Discourse analysis used referencesSocial Sciences, with emphasis on the health-work relationship. The manifestations of HTLV cause functional impairment and influence the living standards, with repercussions on formal, informal and domestic work. The narratives showed complaints of physical symptoms and other related health problems, in addition to prejudice, lack of family support and expressiverepercussions on work, issues aggravated by the absence of public policies aimed at people living with HTLV. The material, symbolic and subjective conditions caused by the progressive loss of physical capacity and early retirement affect not only the physical sphere, but also the psychic and social one. A better understanding of the patient\'s condition and needs can contribute to the provision of comprehensive and effective care by health services and to the development of public policies and defense of rights.
Keywords:
HTLV, Illness Experience, Discourse Analysis, Qualitative Research, Occupational Health
People living with HTLV: meanings of the illness, experience of illness and its relationship with work
Resumo (abstract):
It is estimated a prevalence of 2.5 million people infected by the human T-cell lymphotropic virus in Brazil, affecting mainly afro-descendant populations with low socioeconomic status. This article presents part of the results of a research that aimed to understand the illness experience of people living with HTLV, the ways of going about life and the relationships with work. Thirtyonesemi-structured interviews wereconductedwithusersofaninfectiousdiseaseresearchinstitute. The oral narratives constituted the corpus that was analyzed using the Sketch Engine software. Discourse analysis used referencesSocial Sciences, with emphasis on the health-work relationship. The manifestations of HTLV cause functional impairment and influence the living standards, with repercussions on formal, informal and domestic work. The narratives showed complaints of physical symptoms and other related health problems, in addition to prejudice, lack of family support and expressiverepercussions on work, issues aggravated by the absence of public policies aimed at people living with HTLV. The material, symbolic and subjective conditions caused by the progressive loss of physical capacity and early retirement affect not only the physical sphere, but also the psychic and social one. A better understanding of the patient\'s condition and needs can contribute to the provision of comprehensive and effective care by health services and to the development of public policies and defense of rights.
Palavras-chave (keywords):
HTLV, Illness Experience, Discourse Analysis, Qualitative Research, Occupational Health
Teixeira, M. C. L., Hennington, E. A.. Pessoas vivendo com HTLV: sentidos da enfermidade, experiência do adoecimento e suas relações com o trabalho. Cien Saude Colet [periódico na internet] (2021/jul). [Citado em 23/12/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/pessoas-vivendo-com-htlv-sentidos-da-enfermidade-experiencia-do-adoecimento-e-suas-relacoes-com-o-trabalho/18161?id=18161
