0010/2018 - Tipos de apoyo a las familias con hijos con discapacidad y su influencia en la calidad de vida familiar. Types of support to families with children with disabilities and their influence on the quality of family life.
Entre los aspectos que contribuyen a la calidad de vida familiar están los diferentes apoyos a las familias. Este estudio tiene como objetivo identificar el tipo de apoyos que consideran relevantes las familias de niños con discapacidad usuarios de servicios de fisioterapia en atención temprana y en qué manera la administración pública influencia la calidad de esos apoyos. Se trata de un estudio cualitativo fundamentado en un paradigma crítico social. Los participantes han sido 16 madres y 4 padres que han sido entrevistados, y sus aportaciones se analizaron con análisis de discurso. Entre las aportaciones se destaca la importancia de los apoyos familiares y de las redes de padres de niños con discapacidad. También se destaca el papel de los apoyos profesionales y por lo tanto cómo los recortes en servicios públicos de tipo sanitario y social han agudizado una inequidad en salud en relación a las familias que pueden o no disponer de servicios adicionales. Se sugieren otros enfoques en los servicios que pueden apoyar a las familias.
Palavras-chave:
calidad de vida familiar, investigación cualitativa, atención familiar
Abstract:
Among the aspects that contribute to the quality family of life are the different supports to families. This study aims to identify the type of support that families of children with disabilities, users of early intervention services, consider relevant and that way the public administration influences the quality of this support. This is a qualitative study based on a critical social paradigm. Participants were 16 mothers and 4 fathers who have been interviewed, and their contributions were analysed using discourse analysis. Among the contributions the importance of family support and networks of parents of children with disabilities were highlighted. The role of the supportsthe health professionals is also crucial, and therefore the cuts in public health and social services has exacerbated the inequity in health. In practice this is highlighted in relation to those who can or cannot afford additional services. Other approaches in the support to families are suggested.
Keywords:
family quality of life, qualitative research, family care
Types of support to families with children with disabilities and their influence on the quality of family life.
Resumo (abstract):
Among the aspects that contribute to the quality family of life are the different supports to families. This study aims to identify the type of support that families of children with disabilities, users of early intervention services, consider relevant and that way the public administration influences the quality of this support. This is a qualitative study based on a critical social paradigm. Participants were 16 mothers and 4 fathers who have been interviewed, and their contributions were analysed using discourse analysis. Among the contributions the importance of family support and networks of parents of children with disabilities were highlighted. The role of the supportsthe health professionals is also crucial, and therefore the cuts in public health and social services has exacerbated the inequity in health. In practice this is highlighted in relation to those who can or cannot afford additional services. Other approaches in the support to families are suggested.
Palavras-chave (keywords):
family quality of life, qualitative research, family care
Araújo, CAC, Lourido, BP, Gelabert, SV. Tipos de apoyo a las familias con hijos con discapacidad y su influencia en la calidad de vida familiar.. Cien Saude Colet [periódico na internet] (2018/jan). [Citado em 24/12/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/tipos-de-apoyo-a-las-familias-con-hijos-con-discapacidad-y-su-influencia-en-la-calidad-de-vida-familiar/16543?id=16543&id=16543
