0013/2018 - Deficiência, Incapacidade e Vulnerabilidade: Do capacitismo ou a preeminência capacitista e biomédica do Comitê de Ética em Pesquisa da UFSC. Disability, Inability, and Vulnerability: On ableism or the pre-eminence of ableist and biomedical approaches of the Human Subjects Ethics Committee of UFSC.
A Antropologia cada vez mais tem questionado a hegemonia dos saberes biomédicos nos processos de revisão ética de projetos de pesquisa social atualmente vigente no Brasil, regulado pelo Comitê de Ética em Pesquisa com Seres Humanos de cada instituição sob os auspícios da Comissão Nacional de Ética em Pesquisa (CONEP), através da Resolução nº 196/1996 até então vigente no momento dessa pesquisa de campo. O objetivo deste trabalho é relatar e refletir sobre os percalços enfrentados para conseguir a aprovação, durante o ano de 2012, de meu projeto de pesquisa de mestrado pelo Comitê de Ética em Pesquisa com Seres Humanos da Universidade Federal de Santa Catarina (CEP/UFSC), em Florianópolis. Nessa experiência etnográfica observei, à luz da teoria crip, como se articulam as categorias “deficiência”, “vulnerabilidade” e “incapacidade” para revelar o capacitismo e a primazia do modelo biomédico dessa instância local reguladora da ética em pesquisa na UFSC quanto à participação e capacidade legal das pessoas com deficiência como sujeitos da pesquisa.
Palavras-chave:
Ética em Pesquisa; Deficiência; Incapacidade; Vulnerabilidade
Abstract:
Anthropology has increasingly questioned the hegemony of biomedical knowledge in ethical review processes of social research projects. Currently Brazil is governed by the Ethics Committee on Human Research of each institution under the auspices of the National Ethics Commission Research (CONEP). In 2012 this was mandated through Resolution No. 196/1996 though this resolution has since been replaced by a more recent one 466/12. The objective of this study is to report and reflect on the barriers to getting approval in 2012 for my master\'s research projectthe Ethics Committee on Human Research of the Federal University of Santa Catarina (CEP/UFSC) in Florianopolis. In this ethnographic experience I observed in the light of crip theory, as articulated by the categories \"disability\", \"vulnerability\", and \"inability\" to reveal the ableism and the primacy of the biomedical model in the case of an ethics review at UFSC about the participation and legal capacity of persons with disabilities as subjects of research.
Keywords:
Research Ethics; Disability; Inability; Vulnerability.
Disability, Inability, and Vulnerability: On ableism or the pre-eminence of ableist and biomedical approaches of the Human Subjects Ethics Committee of UFSC.
Resumo (abstract):
Anthropology has increasingly questioned the hegemony of biomedical knowledge in ethical review processes of social research projects. Currently Brazil is governed by the Ethics Committee on Human Research of each institution under the auspices of the National Ethics Commission Research (CONEP). In 2012 this was mandated through Resolution No. 196/1996 though this resolution has since been replaced by a more recent one 466/12. The objective of this study is to report and reflect on the barriers to getting approval in 2012 for my master\'s research projectthe Ethics Committee on Human Research of the Federal University of Santa Catarina (CEP/UFSC) in Florianopolis. In this ethnographic experience I observed in the light of crip theory, as articulated by the categories \"disability\", \"vulnerability\", and \"inability\" to reveal the ableism and the primacy of the biomedical model in the case of an ethics review at UFSC about the participation and legal capacity of persons with disabilities as subjects of research.
Palavras-chave (keywords):
Research Ethics; Disability; Inability; Vulnerability.
Mello, A.G.. Deficiência, Incapacidade e Vulnerabilidade: Do capacitismo ou a preeminência capacitista e biomédica do Comitê de Ética em Pesquisa da UFSC.. Cien Saude Colet [periódico na internet] (2018/jan). [Citado em 23/12/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/deficiencia-incapacidade-e-vulnerabilidade-do-capacitismo-ou-a-preeminencia-capacitista-e-biomedica-do-comite-de-etica-em-pesquisa-da-ufsc/16546?id=16546
