La Calidad de Vida es un concepto utilizado cada vez con más frecuencia para evaluar la afectación de las enfermedades crónicas y la efectividad de los tratamientos médicos. Su abordaje en el campo de la salud suele realizarse a través de cuestionarios autodiligenciados, dada la alta instrumentalización actual del ejercicio clínico. Esos instrumentos tienen utilidad para los profesionales de la salud, al permitirles analizar el efecto de sus intervenciones. Igualmente, son relevantes para la salud pública, en tanto informan acerca de las condiciones de quienes presentan enfermedades cuya prevalencia va en aumento. Sin embargo, en este artículo se plantea que el abordaje de la calidad de vida es limitado cuando se realiza con instrumentos estructurados. En particular se reflexiona acerca de cómo estos excluyen la subjetividad, pese a que son autodiligenciados por los pacientes. También se analizan las limitaciones concernientes a la cuantificación y a la transversalidad que se presenta al evaluar la calidad de vida con estas escalas. Como alternativa para superar estas falencias, se propone el abordaje narrativo, el cual permite dar cuenta de los cambios que se experimentan en la subjetividad con el transcurrir de la enfermedad.
Palavras-chave:
Quality of life; Chronic diseases; Narration
Abstract:
The quality of life is a concept being increasingly used to assess impact of chronic diseases and effectiveness of medical treatments. Its approach in the field of health is usually carried out through self-administered surveys, given the current high instrumentalization of clinical practice. These instruments are useful for health professionals enabling them to analyze the effect of their interventions. Likewise, they are also relevant to public health, as report about conditions of those with diseases whose prevalence is increasing. Nevertheless, in this article, it is proposed that the approach of the quality of life is limited when it is carried out with structured instruments. It particularly reflects on how these exclude subjectivity, despite the fact that they are self-administered by patients. As well, limitations relating to quantification and transversality submitted to evaluate the quality of life with these scales are analyzed. As an alternative to overcome these shortcomings, it is proposed the narrative approach, which allows to report changes experienced in the subjectivity with suffering the disease.
Calidad de vida relacionada con la salud: Exclusión de la subjetividad.
Resumo (abstract):
The quality of life is a concept being increasingly used to assess impact of chronic diseases and effectiveness of medical treatments. Its approach in the field of health is usually carried out through self-administered surveys, given the current high instrumentalization of clinical practice. These instruments are useful for health professionals enabling them to analyze the effect of their interventions. Likewise, they are also relevant to public health, as report about conditions of those with diseases whose prevalence is increasing. Nevertheless, in this article, it is proposed that the approach of the quality of life is limited when it is carried out with structured instruments. It particularly reflects on how these exclude subjectivity, despite the fact that they are self-administered by patients. As well, limitations relating to quantification and transversality submitted to evaluate the quality of life with these scales are analyzed. As an alternative to overcome these shortcomings, it is proposed the narrative approach, which allows to report changes experienced in the subjectivity with suffering the disease.
Lopera-Vásquez, J.P. Health-related quality of life: Exclusion of subjectivity.. Cien Saude Colet [periódico na internet] (2018/jul). [Citado em 22/12/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/healthrelated-quality-of-life-exclusion-of-subjectivity/16874?id=16874&id=16874
