Author:

• Winnie Samanú Lima Lopes - Lopes, W.S.L - <winnie.samanu@gmail.com>
ORCID: https://orcid.org/0000-0003-2433-0103

Co-author(s):

• Martha Cristina Nunes Moreira - Moreira, M. C. N. - <marthacnmoreira@gmail.com>
ORCID: https://orcid.org/0000-0002-7199-3797
• Romeu Gomes - Gomes, R. - <romeu.gomes@hsl.org.br>
ORCID: https://orcid.org/0000-0003-3100-8091

Abstract:

The objective of this article is to analyze the content of the qualitative production produced (2000-2023) on sickle cell disease, in order to support the analytical category – experience of sickle cell disease. Methodologically, we carried out a bibliographical study with a qualitative approach, with a thematic content analysis, anchored in the dialogue between the revised collection and the adopted theoretical-conceptual references. The thematic content analysis led us to eight interpretative dimensions: daily life and itineraries, care, reproductive decisions, stigma and its expressions, gender, participation, race and religiosity. The sickle cell experience emerges related to processes of exclusion, devaluation, ignorance and invisibility, strongly allied to race components in nuances that distance itthe generic illness experience.

Keywords:

Sickle cell disease. Experiência. Chronic Disease. Qualitative Research. Bibliographic Study

Content:

Access Issue in Scielo

Other languages: