0509/2018 - Apoio social e qualidade de vida de famílias de crianças com cardiopatia congênita.
Publicado
Author:
• Gisele Vilella da Silva - Silva, G.V - <gvilelasil@gmail.com>ORCID: https://orcid.org/0000-0002-2628-2873
Co-author(s):
• Denise Ely Bellotto de Moraes - Moraes, D.E.B - <denisebellotto@terra.com.br>ORCID: https://orcid.org/0000-0002-3562-0926
• Tulio Konstantyner - Konstantyner, T. - <tkmed@uol.com.br>
ORCID: https://orcid.org/0000-0002-7931-9692
• Heitor Pons Leite - Leite, H.P - <heitorpons@gmail.com>
ORCID: https://orcid.org/0000-0001-8260-7559
Abstract:
Objective: To evaluate to what extent social support for parents (caregivers) of children with congenital disease impacts their quality of life.Methods: Cross-sectional study with 254 parents of children with congenital heart diseases. A semi-structured interview was conducted with the parents, using the Ecomap and the quality of life (World Health Organization Quality of Life Bref) and social support (Medical Outcomes Study) scales.
Results: Receiving social support was correlated with quality of life (r=0.535; p<0.001). For each point more on the MOS scale there was a significant increase in the total scale score WHOQOL-BREF (β=0.30; IC95%: 0.23; 0.37). Socioeconomic conditions were associated with quality of life scale (β=0.27; IC95%: 0.11; 0.43) and caregivers who reported not having leisure activity (β=-3.27; IC95% -5.55; -1.12) and who were in health treatment (β=-2.86; IC95%: -5.55; -0.17) had a lower perception on quality of life.
Conclusions: Negative consequences to quality of life of caregivers taking care of a child with congenital heart disease can be intensified by lack of leisure activity and having health problems. Social support and socioeconomic resources positively influence the quality of life of these caregivers.
