Disability, Inability, and Vulnerability: On ableism or the pre-eminence of ableist and biomedical approaches of the Human Subjects Ethics Committee of UFSC.

0013/2018 - Disability, Inability, and Vulnerability: On ableism or the pre-eminence of ableist and biomedical approaches of the Human Subjects Ethics Committee of UFSC.
Deficiência, Incapacidade e Vulnerabilidade: Do capacitismo ou a preeminência capacitista e biomédica do Comitê de Ética em Pesquisa da UFSC.

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• Anahi Guedes de Mello - Mello, A.G. - <a.mello@anis.org.br>
ORCID: https://orcid.org/0000-0002-5536-7171

Abstract:

Anthropology has increasingly questioned the hegemony of biomedical knowledge in ethical review processes of social research projects. Currently Brazil is governed by the Ethics Committee on Human Research of each institution under the auspices of the National Ethics Commission Research (CONEP). In 2012 this was mandated through Resolution No. 196/1996 though this resolution has since been replaced by a more recent one 466/12. The objective of this study is to report and reflect on the barriers to getting approval in 2012 for my master\'s research projectthe Ethics Committee on Human Research of the Federal University of Santa Catarina (CEP/UFSC) in Florianopolis. In this ethnographic experience I observed in the light of crip theory, as articulated by the categories \"disability\", \"vulnerability\", and \"inability\" to reveal the ableism and the primacy of the biomedical model in the case of an ethics review at UFSC about the participation and legal capacity of persons with disabilities as subjects of research.

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