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0066/2024 - End-of-life care and grief: study with family members of COVID-19 victims
Cuidados no final de vida e luto: estudo com familiares de vítimas da COVID-19

Author:

• Pablo Leonid Carneiro Lucena - Lucena, P. L. C - <pabloleonid@hotmail.com>
ORCID: https://orcid.org/0000-0002-6427-6570

Co-author(s):

• Alana Vieira Lordão - Lordão, A. V. - <alanavieirap@gmail.com>
ORCID: https://orcid.org/0000-0003-1941-6084
• Adriana Marques Pereira de Melo Alves - Alves, A. M. P. M. - <adrianapereiraalves24@hotmail.com>
ORCID: https://orcid.org/0000-0002-2544-5976
• Patricia Serpa de Souza Batista - Batista, P. S. S. - <patriciaserpa1@gmail.com>
ORCID: https://orcid.org/0000-0001-5080-1605
• Glenda Agra - Agra, G. - <glenda.agra@professor.ufcg.edu.br>
ORCID: https://orcid.org/0000-0002-7352-8100
• Solange Fátima Geraldo Costa - Costa, S. F. G. - <solangefgc@gmail.com>
ORCID: https://orcid.org/0000-0002-6555-8625


Abstract:

Objective: to investigate the implications of grief in family members of COVID-19 victims; verify the prevalence of prolonged grief symptoms; identify family members’ expectations regarding end-of-life care for their loved ones affected by COVID-19. Method: descriptive, cross-sectional research, with a quantitative-qualitative approach. Data collection using an online questionnaire, guided by the PG-13 instrument. Descriptive and inferential statistics were applied. The results were presented descriptively and with the aid of tables. Results: sample of 142 family members, most of them female, who presented emotional, physical, social and financial implications as a result of grief. There was a prevalence of prolonged grief symptoms in 11.4% of mourners with more than six months and 29.6% of those with less than six months. Three thematic categories were identified: transparency in communicating the health situation, access to moments of farewell and promotion of comfort in care actions. Conclusion: the symptoms of Prolonged Grief Disorder have a significant association with the degree of kinship. In final care, family members\' expectations were classified as: permission for a dignified farewell, effective communication and promotion of comfort and care.

Keywords:

Bereavement; COVID-19; Palliative Care; Nursing; Health Communication; Nursing Care

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Lucena, P. L. C, Lordão, A. V., Alves, A. M. P. M., Batista, P. S. S., Agra, G., Costa, S. F. G.. End-of-life care and grief: study with family members of COVID-19 victims. Cien Saude Colet [periódico na internet] (2024/Mar). [Citado em 28/12/2024]. Está disponível em: http://cienciaesaudecoletiva.com.br/en/articles/endoflife-care-and-grief-study-with-family-members-of-covid19-victims/19114?id=19114



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