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0071/2019 - Facing a new realitythe congenital syndrome of the zika virus: the perspective of the families.
Enfrentando uma nova realidade a partir da síndrome congênita do vírus zika: a perspectiva das famílias.

Author:

• Alessandra Gomes Mendes - Mendes, AG - <alesgomen@gmail.com>
ORCID: http://orcid.org/0000-0002-3693-2673

Co-author(s):

• Daniel de Souza Campos - Campos, D. S - <daniel.ufano@gmail.com>
ORCID: https://orcid.org/0000-0002-8937-7474
• Letícia Batista Silva - Silva, L. B - <leticiabatistas@gmail.com>
ORCID: https://orcid.org/0000-0003-2520-2621
• Maria Elisabeth Lopes Moreira - Moreira, M. E. L - <bebethiff@gmail.com>
ORCID: https://orcid.org/0000-0002-2034-0294
• Luana Oliveira de Arruda - Arruda, LO - <luana.oliveira.jf@gmail.com>
ORCID: https://orcid.org/0000-0003-2657-7185


Abstract:

This article presents the partial results of the research on the social implications of congenital zika virus syndrome (SCVZ). The purpose of this study was to analyze the repercussions of the diagnosis on the life of the families attended at a reference institute in Rio de Janeiro, based on a qualitative study based on the thematic analysis of the data collected through semi-structured interviews with 15 mothers in theOctober 2017 to June 2018. The results revealed the helplessness of families and health professionals facing the revelation of a difficult and unprecedented diagnosis; the lack of structuring of a referral network and counter-referral in the care of children when newly diagnosed; the imposition of an exhaustive routine of care, generating social isolation, exhaustion and overload of these women; and the difficulty of access to public policies. Among the resources to confront these adversities were the religiosity and articulation with other women who went through the same experience.

Keywords:

zika; public policy; child; care.

Content:

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Mendes, AG, Campos, D. S, Silva, L. B, Moreira, M. E. L, Arruda, LO. Facing a new realitythe congenital syndrome of the zika virus: the perspective of the families.. Cien Saude Colet [periódico na internet] (2019/Mar). [Citado em 27/09/2024]. Está disponível em: http://cienciaesaudecoletiva.com.br/en/articles/facing-a-new-realitythe-congenital-syndrome-of-the-zika-virus-the-perspective-of-the-families/17145?id=17145



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