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0329/2018 - In the ways of interrupting or not the gestation: Experiences of pregnant women with Anencephaly.
Nas vias de interromper ou não a gestação: Vivências de gestantes de fetos com Anencefalia.

Author:

• Lulia Bicu Fernandes - Fernandes, I.B - <iulia.bicu.86@gmail.com>
ORCID: https://orcid.org/0000-0002-2857-2938

Co-author(s):

• Rozania Bicego Xavier - Xavier, R.B. - Rio de Janeiro, RJ - <r.bicego@ig.com.br>
ORCID: https://orcid.org/0000-0003-3435-8038
• Paulo Alexandre de Souza São Bento - São Bento, P.A.S - Rio de Janeiro, RJ - <saobento@iff.fiocruz.br>
ORCID: https://orcid.org/0000-0002-1598-3340
• Andreza Rodrigues Nakano - Nakano, Andreza Rodrigues - <andrezaenfermeira@gmail.com>
ORCID: https://orcid.org/0000-0002-1873-5828


Abstract:

Anencephaly is a malformation characterized by total or partial absence of the brain and Brazil is the fourth largest number of births of anencephalic fetuses in the world. There is an association between fetal anencephaly and a greater number of maternal complications. From 2012 the woman with anencephalic gestation will be able to maintain or stop the pregnancy, if she so wishes, without the need of judicial authorization. Objectives: to understand the experiences of women with fetal anencephaly and to identify the determinant factors for the choice of interrupting or not interrupting gestation. Qualitative study and method of Life Narratives, with 12 women, over 18 years old and diagnosed with anencephalic fetus, who interrupted gestation or delivery in a public maternity hospital in Rio de Janeiro. The data collection was between June and November 2016 and was closed when the narrative patterns reached progressive saturation,the recurrences. The statements emerged after floating reading and in depth and were articulated in Narrative Nuclei, performing a comparative and comprehensive analysis of the data. The reports brought to light the intense experiences of these women, as well as the weaknesses existing in relation to care.

Keywords:

anencephaly, legal abortion, abortion candidates, women’s health, public health

Content:

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Cite

Fernandes, I.B, Xavier, R.B., São Bento, P.A.S, Nakano, Andreza Rodrigues. In the ways of interrupting or not the gestation: Experiences of pregnant women with Anencephaly.. Cien Saude Colet [periódico na internet] (2018/Jul). [Citado em 27/09/2024]. Está disponível em: http://cienciaesaudecoletiva.com.br/en/articles/in-the-ways-of-interrupting-or-not-the-gestation-experiences-of-pregnant-women-with-anencephaly/16862



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