EN PT


0034/2023 - PHENOMENOLOGICAL CONSIDERATIONS ON THE CHILD/ADOLESCENT\'S PERCEPTION OF HIMSELF LIVING WITH A DISABLED BROTHER
CONSIDERAÇÕES FENOMENOLÓGICAS SOBRE A PERCEPÇÃO-DE-SI DA CRIANÇA/ADOLESCENTE CONVIVENDO COM IRMÃO COM DEFICIÊNCIA

Author:

• Vera Lucia Freitag - Freitag, V.L - <verafreitag@hotmail.com>
ORCID: https://orcid.org/0000-0002-5897-7012

Co-author(s):

• Maria da Graça Corso da Motta - Motta, M.G.C - <mottinha@enf.ufrgs.br>
ORCID: Maria da Graça Corso da Motta
• Gabriel Debatin - Debatin,G. - <gabrieldebatin@gmail.com>
ORCID: https://orcid.org/0000-0003-1139-0115
• Viviane Marten Milbrath - Milbrath, V.M - <vivianemarten@hotmail.com>
ORCID: http://orcid.org/0000-0001-5523-3803
• Jéssica Stragliotto Bazzan - Bazzan, J.S - <jessica_bazzan@hotmail.com>
ORCID: http://orcid.org/0000-0002-8457-134X
• Ruth Irmgard Bärtschi Gabatz - Gabatz, R.I.B - <r.gabatz@yahoo.com.br>
ORCID: http://orcid.org/0000-0001-6075-8516


Abstract:

Objective: To understand the self-perception of children/adolescents who live with a disabled sibling. Methodology: Qualitative research, with a hermeneutic-phenomenological approach, 20 children and adolescents who live with a disabled brothera municipality in the state of Rio Grande do Sul/Brazil participated. A phenomenological interview, field diary and hermeneutic interpretation were used. Results: There were gaps in care, need for attention, understanding on the part of the family, since the attention is given to the disabled brother. The fear and anguish of the death of the grandparents, the death of the disabled brother, the longing for the grandparents after their death. It is noticed that these children/adolescents coexist and question the birth and existence of the sibling. Conclusion: By giving light to the child/adolescent\'s lived world, gaps and weaknesses in the relationship with parents, in health care, and in situations of vulnerabilities experienced by the child/adolescent and family were revealed. In this way, attention is needed to this population, considering that they live with siblings with disabilities, have several vulnerabilities that need to be discussed, aiming at the elaboration of inclusive and efficient care strategies.

Keywords:

Children with disabilities; brothers; phenomenology.

Content:

Access Issue in Scielo

Other languages:







How to

Cite

Freitag, V.L, Motta, M.G.C, Debatin,G., Milbrath, V.M, Bazzan, J.S, Gabatz, R.I.B. PHENOMENOLOGICAL CONSIDERATIONS ON THE CHILD/ADOLESCENT\'S PERCEPTION OF HIMSELF LIVING WITH A DISABLED BROTHER. Cien Saude Colet [periódico na internet] (2023/Feb). [Citado em 21/01/2025]. Está disponível em: http://cienciaesaudecoletiva.com.br/en/articles/phenomenological-considerations-on-the-childadolescents-perception-of-himself-living-with-a-disabled-brother/18660?id=18660



Execution



Sponsors