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0250/2020 - Subjective life experiences of family caregivers of dependent older adults
Vivências subjetivas de familiares que cuidam de idosos dependentes

Author:

• Denise Machado Duran Gutierrez - Gutierrez, D.M.D - <dmdgutie@uol.com.br>
ORCID: https://orcid.org/0000-0002-0031-3045

Co-author(s):

• Girliani Silva de Sousa - Sousa, G.S - <girlianis@gmail.com>
ORCID: https://orcid.org/0000-0002-0988-5744
• Ana Elisa Bastos Figueiredo - Figueiredo, A. E. B - <aebfigueiredo@yahoo.com.br>
ORCID: https://orcid.org/0000-0001-7207-0911
• Maria de Nazaré de Souza Ribeiro - Ribeiro, M.N.S - <mnribeiro@uea.edu.br>
ORCID: https://orcid.org/0000-0002-7641-1004
• Cleisiane Xavier Diniz - Diniz, C.X - <cxdiniz@uea.edu.br>
ORCID: https://orcid.org/0000-0003-4689-6204
• Guiomar Alegria Souza Silva Nobre - Nobre, G.A.S.S - <guiomaralegria@hotmail.com>
ORCID: https://orcid.org/0000-0001-8672-5106


Abstract:

This study aimed to understand the subjective meanings attributed to home care by family caregivers of dependent older adults through a multicenter qualitative investigation that gathered 84 in-depth interviews with family caregiverseight Brazilian locations. The hermeneutic-dialectic, theoretical, methodological framework was employed. The following categories emergedthe analysis: 1. Movements inhibiting emotions and feelings; 2. Presence of processes of symbiosis and emotional dependence in the older adult-relative relationship; 3. Contentment in caring for the dependent older adult; and 4. Giving up current and future life projects. The results reveal life experiences marked by symbiotic processes, emotional dependence, and psychic stress. Dependence causes suffering and feelings of despair, powerlessness, impatience, but also solidarity and empathy. Withdrawalthe job market, social depreciation of family caregiver’s activity, social isolation, neglected self-care, and family conflicts impact caregivers’ subjectivity. The elaboration of public policies must consider the social-affective life experiences of family caregivers of dependent older adults in order to include the care of those providing care.

Keywords:

Family caregivers, Dependent older adult, Care, Subjectivity.

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Cite

Gutierrez, D.M.D, Sousa, G.S, Figueiredo, A. E. B, Ribeiro, M.N.S, Diniz, C.X, Nobre, G.A.S.S. Subjective life experiences of family caregivers of dependent older adults. Cien Saude Colet [periódico na internet] (2020/Aug). [Citado em 15/01/2025]. Está disponível em: http://cienciaesaudecoletiva.com.br/en/articles/subjective-life-experiences-of-family-caregivers-of-dependent-older-adults/17732?id=17732



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