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0172/2023 - The tessitura of discourses in the diagnostic construction of cystic fibrosis: a perspective on access and barriers.
A tessitura dos discursos na construção diagnóstica da fibrose cística: uma perspectiva sobre acesso e barreiras.

Author:

• Katty Anne Carvalho Marins - Marins, K.A.C - <katty.marins@fiocruz.br>
ORCID: https://orcid.org/0000-0002-3035-8113

Co-author(s):

• Martha Cristina Nunes Moreira - Moreira, M. C. N. - <marthacnmoreira@gmail.com>
ORCID: https://orcid.org/0000-0002-7199-3797


Abstract:

The complexities referred to in the search for \"accuracy\" in the diagnosis of cystic fibrosis (CF) point to reflections around \"what is needed\" in the current situation of \"precision medicine\". We analyzed the discourses of 19 social actors belonging to the community of specialists in cystic fibrosis, exploring the semantic meanings of the word \"precision\", and the barriers to diagnosis and innovations in therapeutics. We adopted the Critical Discourse Analysis of Norman Fairclough in order to achieve the discursive constructions around the integrality of care, the guarantee and equitable supply of social basics. Access was identified as an emic category when in the social arenas of dispute are health needs and the right to life.

Keywords:

cystic fibrosis, precision medicine, health needs

Content:

Access Issue in Scielo

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Cite

Marins, K.A.C, Moreira, M. C. N.. The tessitura of discourses in the diagnostic construction of cystic fibrosis: a perspective on access and barriers.. Cien Saude Colet [periódico na internet] (2023/Jul). [Citado em 19/09/2024]. Está disponível em: http://cienciaesaudecoletiva.com.br/en/articles/the-tessitura-of-discourses-in-the-diagnostic-construction-of-cystic-fibrosis-a-perspective-on-access-and-barriers/18798?id=18798&id=18798



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