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0073/2019 - Trajectories and moral experiences of rare and chronic illness in biographies: A theoretical essay.
Trajetórias e experiências morais de adoecimento raro e crônico em biografias: Um ensaio teórico.

Author:

• Martha Cristina Nunes Moreira - Moreira, Martha Cristina Nunes - <marthacnmoreira@gmail.com>
ORCID: https://orcid.org/0000-0002-7199-3797


Abstract:

We have as a subject the dialogue with six literary works, understood in the publishing market as biographies, that contemplate narratives of first and second person on the relation with situations of chronic illness, rare or complex. As a theoretical essay, we try to construct an argument, whether these biographies are public forms of construction and presentation of person, represent the possibility of assigning a place of visibility to moral experiences, of great public appeal, but which need to be recognized in the attention and formation and health as political tools for reflection on practices. In this sense, they become testimonies, providing less biographical trajectories of life, there is an interactionist dialogue between meanings, places, people, positions, stigmata, violations of law and discrimination.

Keywords:

rare diseases; moral experience; testimonies; biographies; trajectories

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Moreira, Martha Cristina Nunes. Trajectories and moral experiences of rare and chronic illness in biographies: A theoretical essay.. Cien Saude Colet [periódico na internet] (2019/Mar). [Citado em 27/09/2024]. Está disponível em: http://cienciaesaudecoletiva.com.br/en/articles/trajectories-and-moral-experiences-of-rare-and-chronic-illness-in-biographies-a-theoretical-essay/17147



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