EN PT


0249/2020 - “We are humans after all”: Family caregivers’ experience of caring for dependent older people in Brazil
“A gente não é de ferro”: Vivências de cuidadores familiares sobre o cuidado com idosos dependentes no Brasil

Author:

• Girliani Silva de Sousa - Sousa, G.S - <girlianis@gmail.com>
ORCID: https://orcid.org/0000-0002-0988-5744

Co-author(s):

• Raimunda Magalhães da Silva - Silva, R.M - <rmsilva@unifor.br>
ORCID: https://orcid.org/0000-0001-5353-7520
• Amanda Márcia dos Santos Reinaldo - Reinaldo, A.M.S - belo horizonte, MG - <amandamsreinaldo@gmail.com>
ORCID: https://orcid.org/0000-0003-0283-2313
• Sônia Maria Soares - Soares, SM - <smsoares.bhz@terra.com.br>
ORCID: https://orcid.org/0000-0003-3161-717X
• Denise Machado Duran Gutierrez - Gutierrez, D.M.D - <dmdgutie@uol.com.br>
ORCID: https://orcid.org/0000-0002-0031-3045
• Maria do Livramento Fortes Figueiredo - Figueiredo, M. L. F. - <liff@ufpi.edu.br>
ORCID: https://orcid.org/0000-0003-4938-2807


Abstract:

This paper aims to understand the experiences of family caregivers with dependent older adults in Brazil and the consequences of caring for dependent older adults in the family caregiver’s life. This is a qualitative multicenter study employing dialectical hermeneutics as a theoretical framework. In-depth interviews were conducted with 84 family caregivers in Brasília, Rio de Janeiro, Belo Horizonte, Fortaleza, Teresina, Porto Alegre, and Araranguá, and Manaus. The thematic analysis yielded three categories: motivations for taking on the caregiving role, influences on the family caregiver’s life, coping, and self-care modalities. The care assumed is influenced by affective relationships with older adults and ethical and moral responsibilities. The influences are related to the lack of preparation for caregiving, financial hardship, restricted freedom, and physical and mental health problems. Coping strategies were religion, spirituality, turn-taking between family caregivers, and learning about the tasks. Women predominate in caregiving due to cultural, ethical, and moral reasons. However, family caregivers often lack guidance and require protection and a support network.

Keywords:

Family Caregivers. Frail Older adults.Care.

Content:

Access Issue in Scielo

Other languages:







How to

Cite

Sousa, G.S, Silva, R.M, Reinaldo, A.M.S, Soares, SM, Gutierrez, D.M.D, Figueiredo, M. L. F.. “We are humans after all”: Family caregivers’ experience of caring for dependent older people in Brazil. Cien Saude Colet [periódico na internet] (2020/Aug). [Citado em 27/09/2024]. Está disponível em: http://cienciaesaudecoletiva.com.br/en/articles/we-are-humans-after-all-family-caregivers-experience-of-caring-for-dependent-older-people-in-brazil/17731?id=17731



Execution



Sponsors