1096/2010 - Cuidado e doença crônica: visão do cuidador familiar no Nordeste brasileiro Care and Chronic Disease: Family Caregiver´s Vision in Northeast Brazil
• Juliana Maria de Sousa Pinto - Pinto, JMS - Salamanca, Salamanca - Univerdidade de Salamanca - <jumsp@hotmail.com>
Coautor(es):
• Marilyn K. Nations - Nations, Marilyn Kay - Universidade de Fortaleza - <nations@unifor.br>
Área Temática:
Ciências Sociais
Resumo:
O cuidado causa estresse na dinâmica cotidiana da família levando a complicações físicas, mentais e emocionais ao cuidador, perda da liberdade e/ou sobrecarga de cônjuges. Entre março e novembro de 2006, essa pesquisa antropológica examinou o cuidado familiar no contexto da Doença Pulmonar Obstrutiva Crônica (DPOC). Utilizando entrevista etnográfica, narrativa da enfermidade e observação participante, objetivou-se descrever a reorganização e convivência familiar com a evolução e experiência com a DPOC, a percepção de cuidadores familiares sobre as dificuldades e limitações vivenciadas junto ao doente e as estratégias de enfrentamento da enfermidade. Participaram do estudo seis cuidadores familiares de baixa renda residentes em bairros urbanos pobres da periferia de Fortaleza, Ceará, Brasil. Da Análise de Conteúdo emergiram as categorias: “dividindo sofrimentos” e “atitudes e comportamentos percebidos e vivenciados pelos cuidadores”. As narrativas profundas mostraram a afetação significativa entre os enfermos e seus cuidadores familiares. Apesar da pobreza, violência estrutural, desemprego, preconceito social e baixos salários endêmicos no nordeste brasileiro, os cuidadores descobrem maneiras efetivas de lidar com a cronicidade além de criar estratégias para amenizar o sofrimento causado pela doença.
Palavras-chave:
cuidado
família
doença pulmonar obstrutiva crônica
Abstract:
Care-taking causes stress in everyday family dynamics leading to physical, mental and emotional complications in caregivers and spouses´ loss of liberty and/or overload. Between March and November 2006, this anthropological research examined family care-taking in the context of Chronic Obstructive Pulmonary Disease (COPD). Employing ethnographic interviews, illness narratives and participant-observation, the objective was to describe families´ reorganization and coexistence with the disease experience and evolution, caregivers’ perceptions about patients´ difficulties and limitations experienced and strategies employed to confront their illness. Six low-income family caregivers, living on poor, urban neighborhood on the periphery of the capital city, Fortaleza, Ceará, Brazil, participated in the study. From the Content Analysis, emerged the categories: “sharing the suffering” and “attitudes and behaviors perceived and experienced by caregivers.” In-depth narratives revealed significant affection between patients and their family caregivers. Despite poverty, structural violence, unemployment, social prejudice and low salaries endemic in the Northeast of Brazil, the caregivers discovered effective ways to cope with chronicity besides creating strategies to diminish suffering caused by the disease.
Care and Chronic Disease: Family Caregiver´s Vision in Northeast Brazil
Resumo (abstract):
Care-taking causes stress in everyday family dynamics leading to physical, mental and emotional complications in caregivers and spouses´ loss of liberty and/or overload. Between March and November 2006, this anthropological research examined family care-taking in the context of Chronic Obstructive Pulmonary Disease (COPD). Employing ethnographic interviews, illness narratives and participant-observation, the objective was to describe families´ reorganization and coexistence with the disease experience and evolution, caregivers’ perceptions about patients´ difficulties and limitations experienced and strategies employed to confront their illness. Six low-income family caregivers, living on poor, urban neighborhood on the periphery of the capital city, Fortaleza, Ceará, Brazil, participated in the study. From the Content Analysis, emerged the categories: “sharing the suffering” and “attitudes and behaviors perceived and experienced by caregivers.” In-depth narratives revealed significant affection between patients and their family caregivers. Despite poverty, structural violence, unemployment, social prejudice and low salaries endemic in the Northeast of Brazil, the caregivers discovered effective ways to cope with chronicity besides creating strategies to diminish suffering caused by the disease.
Pinto, JMS, Nations, Marilyn Kay. Cuidado e doença crônica: visão do cuidador familiar no Nordeste brasileiro. Cien Saude Colet [periódico na internet] (2011/Mar). [Citado em 28/09/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/cuidado-e-doenca-cronica-visao-do-cuidador-familiar-no-nordeste-brasileiro/6935?id=6935
