0042/2022 - Enfoques predominantes en los estudios sobre Calidad de Vida Relacionada a la Salud de jóvenes sobrevivientes de cáncer en la infancia o adolescencia. Revisión integradora de la literatura científica. Predominant approaches in studies on Health-Related Quality of Life of young survivors of childhood or adolescent cancer. Integrative Review.
Los sobrevivientes de cáncer pediátrico constituyen una población creciente. La enfermedad padecida, su tratamiento o la ocurrencia de complicaciones tardías pueden afectar su calidad de vida relacionada a la salud (CVRS). Comprender la CVRS, es un desafío por su complejidad conceptual y la modalidad de su estudio. Objetivo: identificar las líneas de investigación predominantes en el estudio de CVRS en esta población. Métodos: revisión bibliográfica integrativa. Búsqueda sistematizada de artículos primarios indizados. Bases Scopus y PubMed. Resultados:48 publicaciones seleccionadas, se identificaron cuatro líneas principales de investigación: CVRS en sobrevivientes en general; en sobrevivientes de largo plazo; estudio de determinantes de la CVRS; y estudio de aspectos metodológicos sobre medición de CVRS. Predomina el abordaje cuantitativo con instrumentos genéricos de medición, y el modelo conceptual de CVRS basado en la función, enfatiza la importancia de la funcionalidad física, psíquica y social y el impacto sobre ella de la enfermedad y el tratamiento. Conclusiones: incorporar un abordaje cualitativo, basado en el significado, para la comprensión de experiencias vividas desde una perspectiva subjetiva y holística, sería indispensable.
Palavras-chave:
“calidad de vida” “sobrevivientes” “cáncer” “revisión”.
Abstract:
Pediatric cancer survivors constitute a growing population. The disease suffered, its treatment or the occurrence of late complications may affect their health-related quality of life (HRQOL). Understanding HRQOL is a challenge due to its conceptual complexity and the modality of its study. Objective: to identify the predominant lines of research in the study of HRQOL in this population. Methods: integrative bibliographic review. Systematized search of indexed primary articles. Scopus and PubMed databases. Results: 48 ed publications, four main lines of research were identified: HRQOL in survivors in general; in long-term survivors; study of determinants of HRQOL; and study of methodological aspects of HRQOL measurement. The quantitative approach with generic measurement instruments predominates, and the conceptual model of HRQOL based on function emphasizes the importance of physical, psychological, and social functionality and the impact of the disease and treatment on it. Conclusions: incorporating a qualitative, meaning-based approach to the understanding of lived experiencesa subjective and holistic perspective would be indispensable.
Predominant approaches in studies on Health-Related Quality of Life of young survivors of childhood or adolescent cancer. Integrative Review.
Resumo (abstract):
Pediatric cancer survivors constitute a growing population. The disease suffered, its treatment or the occurrence of late complications may affect their health-related quality of life (HRQOL). Understanding HRQOL is a challenge due to its conceptual complexity and the modality of its study. Objective: to identify the predominant lines of research in the study of HRQOL in this population. Methods: integrative bibliographic review. Systematized search of indexed primary articles. Scopus and PubMed databases. Results: 48 ed publications, four main lines of research were identified: HRQOL in survivors in general; in long-term survivors; study of determinants of HRQOL; and study of methodological aspects of HRQOL measurement. The quantitative approach with generic measurement instruments predominates, and the conceptual model of HRQOL based on function emphasizes the importance of physical, psychological, and social functionality and the impact of the disease and treatment on it. Conclusions: incorporating a qualitative, meaning-based approach to the understanding of lived experiencesa subjective and holistic perspective would be indispensable.
Majdalani, M. P., Alazraqui, M.. Enfoques predominantes en los estudios sobre Calidad de Vida Relacionada a la Salud de jóvenes sobrevivientes de cáncer en la infancia o adolescencia. Revisión integradora de la literatura científica.. Cien Saude Colet [periódico na internet] (2022/abr). [Citado em 22/12/2024].
Está disponível em: http://cienciaesaudecoletiva.com.br/artigos/enfoques-predominantes-en-los-estudios-sobre-calidad-de-vida-relacionada-a-la-salud-de-jovenes-sobrevivientes-de-cancer-en-la-infancia-o-adolescencia-revision-integradora-de-la-literatura-cientifica/18298?id=18298
